PoTSUK- Support for People with Postural Tachycardia Syndrome
What is PoTS?
Postural Tachycardia Syndrome is an abnormality of the functioning of the autonomic (involuntary) nervous system. PoTSUK supports people with PoTS by providing reliable information and advice via their website or support services.
Key Symptoms and Diagnostic Criteria
- Patient must experience PoTS symptoms mostly when upright over a period of at least 3 months.
- A sustained increase in heart rate of greater than 30 beats per minute within 10 minutes of standing.
- Those aged 12-19 years require an increase of at least 40 beats per minute.
- These criteria may not apply to those with a low heart rate when resting.
- There is usually no drop in blood pressure on standing.
- Many symptoms are experienced in the upright position (usually standing) and relieved by lying down.
Find out more about PoTS in the 10 Facts About PoTS Guide by PoTSUK.
GPs and Specialists
Often, GPs are not aware of PoTS and the severity of the illness. Therefore, PoTSUK have put together this GP Guide for you to print and take to your next appointment.
There are several kinds of specialists that you might be referred to if you have PoTS such as a cardiologist or neurologist. PoTSUK has compiled a list of specialists with a knowledge of PoTS to help you find the right local consultant.
Support Available from PoTSUK
Find out more about the services and support that PoTSUK provides in this recording of a Healthwatch Bury Live session with Jo from PoTSUK.
PoTSUK has recently launched regional online support groups for people with PoTS to discuss their experiences in a supported environment.
You can also email your questions about PoTS to support@potsuk.org
Raising Awareness of PoTS
PoTSUK have put together some templates for writing to your local MP, GPs and CCGs.
You can also find downloadable resources to share on your social media on the PoTSUK website.
