Bringing Us Together has always been about bringing together people and information and we are truly delighted to launch our Family Survival Guides. Guides written for parents by parents.
So often, there is a lot of information out there but we either can’t find it or we find it too late.
Sometimes when we find it, it is written by someone who is a practitioner and although they have a lot of knowledge, it is difficult for them to truly understand what it feels like to be a family member going through this experience, or they use terminology that we haven’t heard yet.
Care and Treatment Reviews – Family Survival Guide
Finding the right information about Care and Treatment Reviews (CTRs) is something many families have told us they struggled with. As part of our Stronger Together work, we have worked with families who have tonnes of personal experience of CTRs and we are so grateful that a team of them have spent hours for us putting this Guide together.
Our thanks go to Ian Penfold, Leo Andrade, Kath Bromfield, Sally Cullingworth, Deb Evans, Isabelle Garnett, Hazel Griffiths, Lisa Perry, Phill Wills, Lisa Cooks, Frances Steepe, Helen Swift and Julie Newcombe. I am sure many of you will recognise the names and know that these are parents who have so much experience and knowledge to share. None of this would have been possible without them.
What does the Survival Guide contain?
All about CTRs
Who does What
What makes a good CTR
Treatment Pathways / Tools
Medication (including STOMP)
Requesting a CTR
Preparing for the CTR
Surviving the CTR
After the CTR
Disagreements and escalation of concerns
Other helpful resources
We really do hope you find this Family Survival Guide useful. We have plans for many more guides and would love to hear what you would find of use. It can be any subject, just let us know.
Take a look at our Family Survival Guide page and check out the other guides – things we have written previously but collated for you – and let us know what you think.
It would be great if you could leave a quick comment to let the parents involved know what you think of the Guide. Or if you prefer, you can email firstname.lastname@example.org and she will forward your comments on.
Bringing Us Together